Stakeholder Led Support Groups for People with Early Onset Parkinson's Disease - Linnea Tabaka

Year
2024
Tags
Parkinson’s disease
early-onset Parkinson’s
support groups
peer-led groups
stakeholder-led care
speech-language pathology
healthcare support
chronic illness
community health
patient empowerment
case study
neurodegenerative disease
Summary

This research examines a peer-led support group for people with early-onset Parkinson’s disease, exploring their unique needs compared with older adults. The study identifies the benefits and barriers of stakeholder-led groups, clarifies the role of clinical professionals, and produces a co-designed resource to guide future peer-led support initiatives.