Understanding and Measuring Quality of Life for Adolescents Living with Advanced Cancer - Andrea Johnson

Year
2025
Organisation
University of Toronto
Tags
Adolescent Advanced Cancer
Quality Of Life Research
Pediatric Palliative Care
Patient Reported Outcome Measure
PROM Development
Adolescent Oncology
Cancer Psychosocial Needs
Quality Of Life Measurement
Youth Cancer Experience
TikTok Research In Health
Patient Advisory Group
Pediatric Cancer Care
Summary

This research aims to define and measure quality of life for adolescents living with advanced cancer. Using adolescent voices, including social media data and patient advisory input, it identifies meaningful quality-of-life concepts that differ from standard models. The goal is to create a patient-reported measure that improves pediatric palliative and oncology care.